New Findings?

Or at least new to me! Check this out!

http://www.thisisms.com/ftopict-6488.html

I'm in the process of reading and digesting this thread...

Which has ties to this blog post...

http://www.wheelchairkamikaze.com/2009/05/is-ms-actually-vascular-disease.html

Could this vascular problem (blood flow not correct out of the brain) explain my pressure "headaches"? Which have been quite intense these past two days. I will definitely be printing out the paper and giving it to my Neuro in Jan. during my checkup.

Meetup.com

I'm forming a group on meetup.com, in an effort to get more of us connected! The group web address is meetup.com/RubyMountainMSMeetup. Just another way to get the word out!

I'm also thinking that our meetings can vary a bit...I'd love some input Cindy!

Perhaps meet at NNRH at our usual time to start, and then go...get coffee, piazza, something. I know that Cindy would like to get some guest speakers to the meetings. A bit more of an agenda, I'm thinking. Or a topic for each month. The different types of MS (RR, SP, PP) and ways for each of us to function. The latest findings in the research world. Perhaps I will try to get more organized and come up with ideas and get the ball rolling. Any help would be appreciated!!

---OK, scrap the meetup.com thing. I don't want to pay $20 for a meetup group!! There are currently no groups in the Elko area, the closest I can find right now is Twin Falls-none relating to MS but a few other topics. I'll keep looking and see if this can be a go after all. Stay posted!!

Winter edition of Momentum

Which is the magazine of the National Multiple Sclerosis Society, is full of very informative articles. I would encourage you to get signed up for the magazine (if you aren't already!). I will be. Thought I already was. Oh well, try again! Thankx Cindy for letting me read yours!

Fatigue, sleep studies to see if there is something more to your fatigue than just the MS, low vision and preventing falls, PT to help with/assess mobility, some articles about the latest research....Definitely worth checking out!

They have lots of great things on their website, nationalmssociety.org/magazine , and it says you can find the articles from the magazine issues there, but I think I'd still like to get it at home. Don't always have time to sit in front of the computer to read. Plus I like to read while I'm waiting in the car.

November meeting....

Was Friday the 13th. I was early for once!! Cindy was juggling things at home, and after waiting about 45 mins. or so, and no one else showed up, I called it a night.

Now a person could start to feel rather discouraged, with the seemingly poor interest in these meetings. Hope you aren't feeling that way, Cindy! I feel that by continuing to show up, that one of these days someone new is going show up that needs some support, needs to know that they aren't alone.

You will still find me the second Friday of the month at Classroom A of the NNRH, from 6-8 pm. Cindy too! :)

TV Spot!

This morning I got to sit down with Lori Gilbert, of our local NBC news, KENV, to talk about MS. It will air on Saturday, at 4:30 pm. (the day after November's meeting, but at least we are getting the message out there!)

Lori did her homework and had some printouts off of the MSAA website, which I need to check out again!

Lori asked me if I was OK talking about my experiences, which I am. I hope I didn't talk about myself tooo much. I tried to keep things going, not focusing on just me, as this was meant to get awareness out there for all of us, and to let people know about the blog and our monthly meetings.

Remember, I'm not a medical professional, don't take anything I said as law. I tried to make sure that I mentioned all the different types (RRMS, SPMS, PPMS).

All in all I think it went really well!! I'd love to hear some feedback!

Ok-So this Saturday @ 4:30 pm, KENV local NBC station, or check it out on KENVTV.com

:) Alica