Was just Cindy & I! We did manage to get some good brainstorming done. Some more ways to get people to the meetings, or linked to this blog.
While it seems that Cindy and I are developing a good friendship, we would love to see some more faces!
Now I just have to find the paper I made all those notes on......hahaha
Thursday, September 17, 2009
Knowledge is Power DVD
Cindy, I finally got around to watching the DVD you had given me to view at the August meeting. It seems geared toward the newley diagnosed and those in diagnosis "limbo land". Also, freaked out spouses would probably also benefit! (I'm gonna make my hubby watch it). I know of someone going through the Dx hoops, so I'm going to let her borrow it as well.
Monday, September 7, 2009
Reminder: MS Meeting
Just a reminder and an invitation, that our MS Self Help Group meeting is this Friday, September 11, 2009. We hold them at NNRH. If you need more information just ask Alicia or Cindy!
AWESOME JOB ALICIA!
This is absolutely wonderful!!! Alicia you have done a fantastic job!!!! Now all I have to do is learn how to work it...LOL We will let as many people we can know about your site. Now we will be able to each alot more people. YEAH ALICIA!!!!
Saturday, September 5, 2009
Information Resources
Just a few places where I have been able to find some helpful information
-Web MD puts out an e-mail newsletter every few weeks which is MS specific. If I remeber right you have to go to the web site and sign up for it. This newsletter has all sorts of information, from tips to managing stress, diet, to the latest advancements in treatment options. Every newsletter has something different, although I have found that over a few months it can be a touch repetative.
-Neurology Now is a bi-monthly magazine that is free to subscribe to for individuals with a neurological disorder, their families and caregivers. Every issue that I have seen has at least one major article regarding MS, and a few smaller articles. The July/August 09issue's cover story is about singer Victoria Williams and how she copes with her MS. To subscribe you can call 1-800-422-2681 or visit their website, www.NeurologyNow.com
-The June/July 09 issue of Health Monitor featured Montel Williams and his battle in coming to terms with an MS diagnosis on the cover. This is also a free publication, available from your doctors office. It is available at home, you are supposed to fill out a card on the back of the magazine and mail it in. Not helpful if you don't have the magazine in your hand! Check out their website at www.healthmonitor.com , there should be a spot to sign up for a subscription there.
-If you are a mom/female one place that I have found very helpful for peer support/questions is www.Cafemom.com (sorry boys!). You set up a profile, similar to myspace or facebook, but there are two great MS support groups there. Moms with MS, and Moms with Multiple Sclerosis. You will find a diverse group of ladies dealing with all sorts of symptoms/issues, on a wide range of therapies. If you have a question (of course all questions should also be directed to your Dr.!), or just need to vent this is a great resource.
Of course there are also the major MS groups. One of them is the National Multiple Sclerosis Society, www.nationalMSsociety.org
-Web MD puts out an e-mail newsletter every few weeks which is MS specific. If I remeber right you have to go to the web site and sign up for it. This newsletter has all sorts of information, from tips to managing stress, diet, to the latest advancements in treatment options. Every newsletter has something different, although I have found that over a few months it can be a touch repetative.
-Neurology Now is a bi-monthly magazine that is free to subscribe to for individuals with a neurological disorder, their families and caregivers. Every issue that I have seen has at least one major article regarding MS, and a few smaller articles. The July/August 09issue's cover story is about singer Victoria Williams and how she copes with her MS. To subscribe you can call 1-800-422-2681 or visit their website, www.NeurologyNow.com
-The June/July 09 issue of Health Monitor featured Montel Williams and his battle in coming to terms with an MS diagnosis on the cover. This is also a free publication, available from your doctors office. It is available at home, you are supposed to fill out a card on the back of the magazine and mail it in. Not helpful if you don't have the magazine in your hand! Check out their website at www.healthmonitor.com , there should be a spot to sign up for a subscription there.
-If you are a mom/female one place that I have found very helpful for peer support/questions is www.Cafemom.com (sorry boys!). You set up a profile, similar to myspace or facebook, but there are two great MS support groups there. Moms with MS, and Moms with Multiple Sclerosis. You will find a diverse group of ladies dealing with all sorts of symptoms/issues, on a wide range of therapies. If you have a question (of course all questions should also be directed to your Dr.!), or just need to vent this is a great resource.
Of course there are also the major MS groups. One of them is the National Multiple Sclerosis Society, www.nationalMSsociety.org
Support Meetings
Cindy has taken it upon herself to organize monthly support/self help meetings.
Multiple Sclerosis Self help groups are meant to be a source of information and support to those in attendance. It is an environment for people to gather and share information.
People with MS, family or friends of someone with MS are all welcome to participate.
Meetings are once a month. They are scheduled for the second Friday of each month from 6:00 to 8:00 pm.
They are held in Classroom A at the Northeastern Nevada Regional Hospital in Elko. Ask the reception desk for directions. (The classroom is through the cafeteria).
For more information or questions please contact Cindy 775-738-4564.
Multiple Sclerosis Self help groups are meant to be a source of information and support to those in attendance. It is an environment for people to gather and share information.
People with MS, family or friends of someone with MS are all welcome to participate.
Meetings are once a month. They are scheduled for the second Friday of each month from 6:00 to 8:00 pm.
They are held in Classroom A at the Northeastern Nevada Regional Hospital in Elko. Ask the reception desk for directions. (The classroom is through the cafeteria).
For more information or questions please contact Cindy 775-738-4564.
Welcome!
The purpose of this blog is to connect all of those dealing with Multiple Sclerosis in some form (whether you have the disease, or are the family memeber or friend of someone with MS). To share information and experiences, support each other, and even vent a little if you need to (please keep it clean! Comments will be monitored and inapropriate content will be deleted).
But please, if you have anything to add/correct, whatever, leave a comment!
But please, if you have anything to add/correct, whatever, leave a comment!
Subscribe to:
Posts (Atom)
Posts
